Forums on intractable pediatric diseases

The forums on intractable pediatric diseases are being held by the initiative of the family group of patients with biliary atresia, “Association for Saving Children with Biliary Atresia,” as the enlightenment activities about the importance of early detection and improvement in therapeutic method for overcoming biliary atresia. Through holding of these forums, approaches for the issues, such as introduction of the USBA test in infant medical examination, have been made to the concerned bodies commencing with the administrative organizations.

Holding history of the forums on intractable pediatric diseases

(SANYO FINE CO., LTD. actively supports the forums)

The 6th Forum: February 19, 2011

Place:	Miyagi
Theme:	Proposals for early detection/early dignosis of biliary astresia
Contents of the forum:	Greeting by the organizer Kimio Nakagawa(Chairman of gynecologist association, in Miyagi Pref.) Yuichiro Yamashiro(Chairman of the Workshop on the Early Detection of Biliary Atresia) What parents think? Kyoko Ohtomo(Miyagi Branch of the Association for Saving Children with Biliary Atresia) Forum 1. Necessity and Future prospective of Biliary Atresia Mass Screening Toshihiro Muraji(Sub Director and Infant Surgical Director of Children's Hospital in Ibaragi Pref.) 2. The actual approach on the mass screening actually ・For Nagasaki Pref. Masayuki Ohata(Tumore Surgical Lecturer at Graduate School of Nagasaki Univ.) ・For Okinawa Pref. Ryo Kinjo(Sub Director of Nambu Medical Center/Children's Medical center Infant Surgical) 3. Current State and Proposal in Miyagi Pref. Masaaki Nio(Prof. of Infant Surgical Area at Graduate School of Tohoku Univ.)

The 5th Forum: September 8, 2007

Place:	Garden Restaurant Tokugawaen
Theme:	Proposals for early detection/early diagnosis of biliary atresia
Contents of the forum:	Greeting by the organizer Yuichiro Yamashiro (Special-Appointment Professor, Juntendo University School of Medicine), Chairman of the Workshop on the Early Detection of Biliary Atresia At opening of the forum Shun Hashimoto (Professor in the Department of Pediatrics, Fujita Health University) What parents think? Yoshiro Hase, Aichi Branch of the Association for Saving Children with Biliary Artesia Forum on early detection Chairman:Takao Sekiya (Lecturer in the Department of Obstetrics and Gynecology, Fujita Health University) 1. Current status of the diagnosis and therapy of biliary atresia Masaki Nio (Director of the Department of Surgery, Miyagi Children’s Hospital) 2. Trials of early detection of biliary atresia in the Nagasaki prefecture-Approaches made in this year and future issues- Masayuki Ohata (Lecturer in the Department of Tumor Surgery, Graduate School of Medical Sciences, Nagasaki University) 3. A pilot study on biliary atresia by the assay of USBA Mitsuyuki Suzuki (Department of Pediatrics/Puberty, Juntendo University School of Medicine)

The 4th Forum: July 15 (Saturday), 2006

Place:	Lasse Hall (5F Meeting Room Sunflower), Kobe-shi, Hyogo
Theme:	Proposals for early detection/early diagnosis of biliary atresia–toward detection until 1 month after birth–
Contents of the forum:	Greeting by the organizer Yuichiro Yamashiro (Special-Appointment Professor, Juntendo University School of Medicine), Chairman of the Workshop on Early Detection of Biliary Atresia Greeting by the guest Promotion of healthcare/welfare administration Toshizo Ido (scheduled), Governor of the Hyogo Prefecture Current status of children's hospital Hajime Nakamura (Director of the Hyogo Children's Hospital) Keynote lecture Early detection and early diagnosis are the keys to the therapy of biliary atresia in children Yujiro Maru (Special Board Member of Association for Saving Children with Biliary Atresia) What parents think? Yoko Hiranuma (family member of patients with biliary atresia) Forum on early detection Chairman:Takao Sekiya (Lecturer in the Department of Obstetrics and Gynecology, Fujita Health University) 1. Diagnostic timings and data in Japan: From the data registered by the Japanese Society of Biliary Artesia Masaki Nio (Director of the Department of Surgery, Miyagi Children's Hospital) 2. Approaches by obstetricians for early detection of biliary atresia Hideaki Masuzaki (Assistant Professor in the Department of Obstetrics and Gynecology, Nagasaki University School of Medicine) 3. A method for early detection of biliary atresia–on the assay of USBA– Toshihiro Muraji (Director of the Department of Pediatric Surgery, Hyogo Children's Hospital)

The 3rd Forum: November 23 (Wednesday), 2005

Place:	The Hall of Nagasaki Ken Medical Association, Nagasaki-shi, Nagasaki
Theme:	Unknown actual conditions and reality of intractable pediatric diseases–Proposals for early detection/early diagnosis of biliary atresia–
Contents of the forum:	Greeting Shinichiro Yamasaki (Director of the Welfare and Healthcare Department, Nagasaki Prefecture) Presentation of experience Early detection and early diagnosis are the keys to the therapy of biliary atresia Mayumi Yakui (Head of the Nagasaki Branch, Association for Saving Children with Biliary Artesia) Lectures 1. Biliary atresia: On neonatal/infantile cholestasis and early detection Toshihiro Muraji (Department Director of Pediatric Surgery, Hyogo Children’s Hospital) 2. Examination of the cases of Kasai operation performed during neonatal period–Proposal for early diagnosis– Iwao Yamagiwa (Assistant Professor of the Department of Circulatory/ Respiratory Organs and Pediatric Surgery, Yamagata University School of Medicine) 3. A method for early detection of biliary atresia–On the USBA assay and the fecal color code test method– Masayuki Ohata (Lecturer in the Department of Tumor Surgery, Graduate School of Medical Sciences, Nagasaki University) 4. International trend of standardization in the field of general laboratory examinations of feces and urine, etc. Kiich Ito [Professor in the Department of Basic Human Sciences, Kanagawa University of Human Services, Chairman of the nonprofit organization, Committee for Standardization of Urinalysis of the Japanese Committee for Clinical Laboratory Standards (JCCLS)]. 5. Toward early detection and early diagnosis of biliary atresia–a desire for early use of the UBSA method– Association for Saving Children with Biliary Artesia

The 2nd Forum: October 9 (Saturday), 2004

Place:	Sendai Silver Center, Sendai-shi, Miyagi
Theme:	Toward conquest of biliary atresia–Proposals for early detection and new therapeutic strategy
Contents of the forum:	Greetings Shiro Asano, Governor of the Miyagi Prefecture At holding of this forum Futoshi Utsumi, Miyagi prefectural assembly member Keynote lecture Issues of pediatric medicine and children's hospitals Ryuji Oi (Director of the Miyagi Children's Hospital) Lectures 1. On cholestasis in neonates and suckling infants Daiki Abukawa (Department Director of General Medical Practice, Miyagi Children's Hospital) 2. Surgical treatment of biliary atresia Masaki Nio (Department Director of Surgery, Miyagi Children's Hospital) 3. Current status of liver transplantation Susumu Satomi (Professor in the Department of Advanced Surgery, Tohoku University School of Medicine) 4. The possibility of mass-screening of biliary atresia by the assay of urinary sulfated bile acid Toshihiro Muraji (Department Director of Pediatric Surgery, Hyogo Children’s Hospital) 5. Current status and issues of patients with biliary atresia Yujiro Ishimaru (Representative of the Association for Saving Children with Biliary Atresia)

The 1st Forum: February 28 (Saturday), 2004

Place:	Osaka Dawn Center (Osaka Prefectural General Center for Women), Osaka-shi, Osaka
Theme:	Biliary atresia: Development of a method for early detection and the forefront of therapy
Contents of the forum:	Keynote lecture Current status and issues of patients with biliary atresia Yujiro Ishimaru (Representative of the Association for Saving Children with Biliary Artesia) 1. Progress in diagnosis and therapy: Development of the USBA assay method for early detection and future development Toshihiro Muraji (Department Director of Pediatric Surgery, Hyogo Children's Hospital) 2. Therapy of intractable diseases: Current status and the future of transplantation Mikiko Ueda (Lecturer in the Department of Transplantation Surgery, Kyoto University)